The parents of a Much Hoole boy with severe epilepsy have been to Downing Street to demand MPs take immediate action over life-changing medication.
Joanne Griffiths and her family are spending more than £2,000 a month paying privately for medical cannabis oil which has reduced 10-year-old Ben’s seizures from 300 a day to 12.
Two cannabis based medicines have been cleared for NHS use – but a row over the price set by drug companies has stalled their roll-out.
Instead, families are still having to turn to private doctors and raise the cash themselves. They accused Prime Minister Boris Johnson and Health Secretary Matt Hancock of breaking promises.
“We are demanding this treatment is made available immediately while costs are worked out, because our children can’t wait.”
Asked if he lied to Mrs Griffiths while on BBC Breakfast, Mr Hancock said: “No, I met her and many other parents whose children benefit from these cannabis-based drugs. I changed the law to allow the cannabis-based drugs to be used in this country.
“There was then a report from the National Institute which decides what is paid for on the NHS that came out exactly as she said a few months after our meeting and that report said that the costs that are being charged by the companies are too high.”